Anyone Found Help/Explanation for Long Covid Neurological Symptoms?

Your post covid diagnosis per MayoClinic docs is "Central Sensitization" Look online including YouTube video titled "Tame The Beast"

I’m happy it has worked for you. I read a little on this supplement, but as always, claims are anecdotal. There are no scientific studies to prove efficacy. PEA is found naturally in peanuts, egg yolks and naturally in our body, but you lose only a few bucks to try. Good luck.

I had covid last November and was given Paxlovid for 5 days…it really helped but I rebounded because the Paxlovid wore off. I also had severe night sweating and later on it went to days too…what troubles me most is that I get palpitations with the sweating.. I’m wearing a Holter to monitor my heart rhythm. I have a friend who is going through hell with long covid and she is now a test subject for studying the effects of covid..what I have learned is that they have very little info on what covid can do to us on a long term basis..we’re dealing with a virus that is new to our lives so the doctors are often at a loss of what to do with us. I wish to give you more inspirational feedback, at least I can say that I know lots of people who got better with time so don’t give up on hope for better days, amen.

Plain and Simple Central Sensitization Syndrome..after a cytokine storm that COVID triggered.

I find "Plain and simple" a huge generalization of total incompetence in this matter. First, we create a syndrome (CSS) to cover the symptoms of Long Covid and label it an incurable illness that people will have to live with because no one wants the liability of treating it. Then we blame it on our immune system (Mother Nature creating cytokine storms with our immune system. ) Not asking Why? Not testing to diagnose, or for that matter just considering its potential causes. Why not call it Long Covid Syndrome - Don't Bother Me With Your Complaints - Because I Don't Know and Don't Want To. LCSDBMWYCBIDKADWT. Now that's an acroym you can choke on.

First of all you don’t know me. And the simplest place to start is to understand CSS. People are more than welcome to ask more questions. If you like to look at content I previously posted you will find out the scope of my understanding. I also understand the frustration because I have had longhaulers since 9/28/2020.

I am suffering from "long Covid" how do I find a study group?

I'm sorry if you thought I was directing my feelings about Central Sensitization Syndrome (CSS) toward you - I was not. I too am a Long Hauler and what I think is "A huge generalization of total incompetence" is the fact the medical, insurance ... industry has created a new acronym -CSS , to roll all the symptoms of Long Covid into and label it as an incurable illness that all will have to live with. The new name disassociates the illness with its probable cause (Covid and or its vaccines).

You do know the Covid vaccines, cures and treatments did not use real viruses to trick the immune system into attacking the virus in our bodies. They used spike proteins fool mother nature (our immune system). So now these cytokine storms are now attacking our brain, nerves, heart, lungs, and who's to say it couldn't be related to the first attempt to mess with our immune system?

So if you understand CSS is nothing more than a label to distance long covid symptoms from covid, calling it incurable is basically giving an excuse to not investigate and treat it and blaming it on cytokines rather than tracing it one step further to explain what they are and what caused these storms is in my mind - "A huge generalization of total incompetence".

I feel your frustrations. I would like to share more research and solutions to the burdens of your symptoms. I wish you Wellness and recovery. You can look up my content on social media on #covidrecoverymama I’d be happy to share some links. Be well 🌱

Hi! So glad I found you. I am helping my friend with similar symptoms. She wants to know if you have to get out of the shower when you have these attacks. She does. Also, she wants to know how long these vibrational attacks have lasted. Hers last a long time.