← Return to Essential Thrombocythemia: Looking for information and support

Discussion

Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: Nov 4 11:06am | Replies (597)
Comment receiving replies
@eileen11108

Jackt00,

To answer your question…when the headaches started I had some dizziness and a first ever vertigo attack. I saw an ENT who ordered an MRI of the head and a two hour balance/dizziness/vertigo test. All tests were negative and I started taking HU 500 mg every other day instead of daily, It was lowering my platelets nicely but headaches never disappeared. I am beginning to think it is the ET JAK2 causing the headaches and HU only aggravates it.

I see my hematologist next week. They do labs at her office and I am hoping to again take HU every other day.

Eileen

Jump to this post

Replies to "Jackt00, To answer your question…when the headaches started I had some dizziness and a first ever..."
jackt00 | @jackt00 | Mar 25, 2023

I took my first HU pill yesterday. Within 2 hrs, hi got a terrible headache and some dizziness. I took my migraine pill so I could sleep and woke up fine this morning. I see my hematologist April 3.
Keep me posted as to what your Hematologist suggests. Good luck

VIEW AND REPLY