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Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: Nov 4 11:06am | Replies (597)
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@jackt00

Thanks so much for your input Eileen. Very much appreciated and I will talk with my hematologist about starting hydroxyurea slowly rather than every day I hope your headaches have subsided and I hope I don’t get them. Another question, have you ever had other side effects? That disappeared overtime?

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Replies to "Thanks so much for your input Eileen. Very much appreciated and I will talk with my..."
eileen11108 | @eileen11108 | Mar 22, 2023

Jackt00,

To answer your question…when the headaches started I had some dizziness and a first ever vertigo attack. I saw an ENT who ordered an MRI of the head and a two hour balance/dizziness/vertigo test. All tests were negative and I started taking HU 500 mg every other day instead of daily, It was lowering my platelets nicely but headaches never disappeared. I am beginning to think it is the ET JAK2 causing the headaches and HU only aggravates it.

I see my hematologist next week. They do labs at her office and I am hoping to again take HU every other day.

Eileen

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