Hi- I know it’s been a while since your post, but I came across it searching for references to pelvic congestion syndrome. I was wondering if you might be willing to share anything your experience…how you were diagnosed or your experience with treatment?

A Mayo doctor ordered a pelvic CT for me, because I have POTS, hypermobility, and pelvic pain, and there may be signs of pelvic congestion. I have an appointment to discuss findings with interventional radiology. But I haven’t been screened for endometriosis or fibroids yet (exams and imaging are very difficult for me). I’m worried about how to know with more certainty pelvic congestion could be a cause of my pain, when there are also so many other potential causes that are also difficult to diagnose, so just wanted to reach out if you were willing to share anything about your experience. Thanks so much!