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Treatment options for Livedoid Vasculopathy (LV)

Skin Health | Last Active: Dec 14, 2023 | Replies (70)

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@gonefishinmt

Hi @aimeenc:

Welcome to the discussion group and thanks for sharing your story. I hope you've had a chance to read some of the previous posts on the subject of LV. There are several threads going on LV topics, so please look at all of them for information, answers and suggestions. I'm sure @colleen_young can help with pointing you in the right direction.

For all - I appear to be having positive results with EpiFix and with DuoDerm, although its only been one week since I started on both. Will keep everyone up to date on my progress using these treatments. BTW for everyone's information, both EpiFix and DuoDerm are considered to be treatments so thus far are covered by Medicare Part B. I was denied use of CellCept under Medicare Part D (Rx meds).

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Replies to "Hi @aimeenc: Welcome to the discussion group and thanks for sharing your story. I hope you've..."

@gonefishinmt Thanks for making the introduction to @aimeenc. Welcome to Connect Amiee and especially this growing group of people sharing about LV.

There are a couple of other active discussions that you might also like to read.
https://connect.mayoclinic.org/discussion/livedoid-vasculopathy/
https://connect.mayoclinic.org/discussion/chronic-wound-care-what-products-do-you-use/
I'd like to tag @ceejay and @vickieb to join this discussion, then I think we'll have all the active LV Connect members together.