I have UCTD. Luckily, I was quickly diagnosed and put on medication that has helped immensely. Yes, it would be nice to have a group for this condition. I also have FOSMN (facial onset sensory and motor neuronopathy) which is a deadly disease hard to diagnose and not included in these Mayo forums. Yet, people have gone to Mayo and have been diagnosed there with FOSMN. It's a headscratcher why they aren't recognized as conditions in this community.