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Polycystic Liver Disease (PLD): Let's support each other

Just Want to Talk | Last Active: 3 hours ago | Replies (29)
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@rosemarya

@iowachica, I want to welcome you to Connect. This is a good place to ask questions and get support while sharing your own experiences to help others. I see that you have already met @pachab00. I would like to extend an invitation to @erikaclark, who also has experience with PLD that might be helpful.

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Replies to "@iowachica, I want to welcome you to Connect. This is a good place to ask questions..."
iowachica | @iowachica | Apr 14, 2023

Thank you @rosemarya a day or so, I posted an update about my condition and @pachab00 answered. From what I have read, and correct me please, PLD is only managed by getting rid of the cysts (draining or sclerosed) but is this day surgery or does it involve more? When it comes to a 'time' frame of reoccurrences of having this procedure done (1,2,5 or 10 years) looks like it depends on the person.
As this progresses will I need to be monitored by CT's and ultra sounds or more like annual MRI's.
In the older posts, I see genetic testing was an idea to have. Can someone tell me the reason why?

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