Most of us seem to have been blind-sided with a PV diagnosis… I’m willing to bet that most(myself included) never heard of it.. In my case, something didn’t feel quite right… Slight dizziness that I thought was a problem with the brain, not some rare blood disease that required a cancer medication and phlebotomies… HU along with baby aspirin and phlebotomies when necessary seems to be the initial standard of care.. I hope I don’t have to progress to the next treatment phase for a long time… For now, I stay active… bike, swim, lots of walking, etc and that seems to help…