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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: 14 hours ago | Replies (774)

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Hi There. My name is Tracey. I was diagnosed at 50,with MGUS. The proper blood tests that Oncologist need was never done When a Dr Assistant was in I had time to explain to him and get the Sep? Test done. 7 Flagged pages. I was over on almost or let’s say lots. I asked for the report. Saw it. I went to Cancer Care as I was scared. My dr said I was fine. Then the pain in my side back. Neely button hernia,kidney stones and Uteter stones. Had for over a year. Nothing done. No surgery to fix hernia. They said kidney stones were big over a mm? Hard to pass. My dr will not call me help me. I am on pain meds but I still have it. He won’t increase. Nothing. I cannot your comment about Kidney stones. Wow. I will try to keep u posted. Really sick. Sorry for not replying etc. you are in my thoughts. God Bless❣️🇨🇦

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Replies to "Hi There. My name is Tracey. I was diagnosed at 50,with MGUS. The proper blood tests..."

That’s a lot to deal with. I’m so sorry. Are you able to get some recommendations for a physician who will better meet your needs? It’s so frustrating to have so many questions and need better outcomes.
Is there a social worker attached to the facility in which you receive your care? They can often assist in helping you to be actually heard.
Keep insisting on getting the treatment you need. The squeaky wheel does get the attention.

Are you seeing a Urologist. I know they have a treatment today that has something to do with breaking the stone with ultra sound. My son's friend lives in Texas and he had this treatment.