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Meeting up with others who are having Proton Treatment

Prostate Cancer | Last Active: Mar 25 7:26pm | Replies (54)

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@bens1

rockin2047: a lot has happened since I posted that in November as a patient but to answer your questions, the MRIdian was what I ended up using. It was 5 treatments with 2 mm margins. My last treatment was February 14. The margins are really important and the margins are from the edge of the prostate. I had the same concern as you regarding healthy tissue. So far the side effects for me are some urine restriction but Flomax gives me about 85% urine flow and I feel a bit more tired than usual.

I looked into HIFU which struck me as limited data with results that anecdotally did not last. I looked into cyberknife, brachytherapy, cryo and heat ablation…and narrowed it down to Proton therapy and the MRIdian from Viewray. I chose the MRIdian for its narrow margins, real time MRI/radiation combo unit and automatic gating shutoff.

I did not spend any time on webmd. You may want to look at nccn.org formed by Dr’s for Dr’s and patients. I would also consider spaceoar.

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Replies to "rockin2047: a lot has happened since I posted that in November as a patient but to..."

Just wish there was a MRIdian facility near me. Closest is in California. So I will have to make do with proton at Mayo. I am getting SpaceOar.