← Return to Burning Mouth Syndrome (BMS): Anyone found any relief?Discussion
Burning Mouth Syndrome (BMS): Anyone found any relief?Skin Health | Last Active: Apr 30 2:42pm | Replies (79)
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Hello @grammargal. I am sorry you have been dealing with this for so long. I wanted to quickly connect you to others who have shared their experiences to let you know you are not alone, so you will notice I have moved your post here:
– Burning Mouth Syndrome (BMS): Anyone found any relief?: https://connect.mayoclinic.org/discussion/burning-mouth-syndrome-2/
Members @dustycat52 @btsum68 and @joybringer1 have previously shared and I also see that member @gracie71 has already joined you with a response.
When is your appointment with your new neurologist?
Mine started in 2010. Tried all the recommended drugs.saw a dermatologist who was an MD and a DDS. We tried Xanax at 1mg. It worked. I now take 1/4 mg per day. Tapered down over time and it’s no longer a problem unless I eat spicy foods. Never had any side effects. If I stop however it comes back. A real lifesaver for me. Good luck.
I also suffer from BMS brought on when an endodontist gave me a shot that injured the trigeminal nerve. That was 6 very long years ago. Gabapentin helped in the beginning as did oral Clonopin and Lyrica. Then their efficacy
wore off. Cymbalta has made some improvements. The nerve damage also radiates on one side of my face and lip. I'm so sorry for your pain because I understand. It has been a life altering event that most people don't have a clue about much less compassion. These are things that have helped me: dental gum sticks, dental floss, toothpaste for sensitive teeth, ice packs, heat packs, lidocaine, Benzo-gel, ice cream and for some unknown reason (for me at least) peanut butter milkshakes. I also drink ice water constantly. I've been told that CBT is helpful as would be medical marijuana. I've been to countless doctors and dentists and pain clinics. It seems like the pain has a circadian rhythm to it worsening in the afternoon into the evening. The pain causes such exhaustion. A good acupuncturist may be able to help you.