@loribmt I am in Canada so on a government health plan. Doctors will not order any test the government will not pay for. And the primary physician decides whether you need to see a specialist for further testing - we cannot ask for investigational testing. Even if the doctor orders, say, an MRI if the MRI technologist decides the MRI is not necessary based on results of a CT scan you cannot get that MRI. I have asked my doctor for an MRI after ultrasounds and CT scan did not reveal cause of the pain in my upper right quadrant, as well as the mysterious bulge I have had for years on my lower right side just above my hip bone but the radiologist has deemed an MRI unnecessary. Everything really boils down to what the government plan (in the case of Ontario, the OHIP plan) will approve or disapprove.

Thanks for the info. Wow there are so many diseases out there that you never heard of. My pain gets relived about 40 min after eating and that is provided I'm laying down. It usually stays better until my stomach starts getting emptier BUT if I stand up with food in my stomach the pain comes back right away. So it does seem my stomach is weighted down and pulls on some ligament or nerve when I stand. I also get heartflutters when standing and a strange pulling feeling in my chest. Also when I sneeze or cough I can get tiny nerve shocks across chest and into arms. So that part would probably match a very inflamed esophagus but I have no visual damage so I could be wrong. I do wake up with pain at night.
Yes my neurological symptoms are very worrying. It started acutely and I was cramping and jerking intensely in my body. The myoclonic jerks have subsided lately and are not happening so often.
I also feel that my arms are weaker and I do think I have nerve damage in my right arm but I don't know if it the pinched kind or the destroyed kind. My lips tingle when I eat and my nose tingles off and on and I have pain inside nose that comes and goes. I also get these waves of vibration tingles in scalp and arms legs etc plus internal vibrations that also fluctuates. I'm waiting for another brain mri, spinal tap and cervical spine mri.
Like I mentioned here before Im afraid it was a reaction to Prilosec and nexium. I'm so very afraid to try them again. I'm on pepcid now but they go straight into the brain so they could potentially have a bigger risk of causing neuropathy. It's all a mystery and I just have to keep trying to find the answers. All I know for sure is that Ive acid coming into my esophagus for 30 years and that I had no idea until 2014 that I had a hernia. Nor did I understand the severity of reflux disease until 2019.