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Staying strong and facing an uncertain /certain future

Caregivers | Last Active: Jun 22, 2023 | Replies (60)

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@valandsheri

Good morning to my Kinred Spirit! Yes, I just knew it too! This is sounding very familiar....leftovers from family...hoarding...collecting, oh my. Tales for another conversation 😁 I hope the closet cleaning went well!

Mr. Ray of Sunshine asked me a question this morning. Knowing that everyone is different, he's wondering how long it takes, once his treatment is complete, to start getting his energy back? Or, as he said "do you ever get it back?"

The fatigue hit him harder this round, for sure. Mr. CRABBY Pants emerged, as well. Very unusual, but, I pulled on my Crabby/Snotty Pants, too. Ugggh. It's like a battle of the wills, then shutdown on both sides. I'm telling myself that it's his frustration at the fatigue. I'm also working on backing off a bit. Even under normal circumstances he does not like to be hovered over. At least this morning we're being pleasant🙄 It can only go up from here!

Have a beautiful Sunday!!

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Replies to "Good morning to my Kinred Spirit! Yes, I just knew it too! This is sounding very..."

Back in the 70s, my boyfriend at the time (now husband for almost 49 years) gave me a button that read,
“Patience is a virtue…Virtue can hurt you!” 😂. My mum didn’t find humor in that. Anyway, patience for Mr Crabby Pants seems to be a challenge. (It also didn’t go unnoticed that crabby was all in caps!!)
His energy should return to normal or near normal after all the treatments end. Of course everyone is different and it can take a little longer for some people than others. But knowing the drive and ambition of Mr Sunshine, his motivation will have him recuperating at a steady rate. The healthier and more active people tend to be prior to treatment, and if they keep walking during, they bounce back much faster. Several of my doctors and nurses attributed my quick rebound to all the walking I did while in treatment. It really does make a difference. So with all your husband’s trips out to the work shop and trying to maintain some semblance of normalcy, he’s going to be fine!

As far as butting heads…from my perspective as a patient; My husband was so attentive and very much like you wanting to make sure safety rules were being followed, temps taken, food intake, meds downed, etc… As much as I love him dearly and appreciated his TLC, I felt I was being overly protected and smothered.
As patients we’re quite aware that we’re ill, weak and vulnerable. It’s difficult to maintain dignity when you’re feeling like a child being told what to do, no matter how much love is behind the intentions. A good trick is to pick your battles and maybe lengthen the leash a little bit. By now he knows the routine and the rules! ‘Think~2 year old”. He may be contrary but he still needs you. So just stand by, be supportive and take some time for yourself and your creativity while he’s going through the crabby stage of his chemo cycle. Hang in there!! ☺️