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Does anybody have gnawing stomach pain just above bellybutton?
Digestive Health | Last Active: Apr 14 3:50pm | Replies (38)Comment receiving replies
Yes. I had an endoscopy in January and they couldn't see anything visually wrong. I'm still waiting for biopsy results. I've had 9 endoscopies over some years and only one showed esophagitis grade 1 despite unbelievable pains. I would have cough, reflux, wheezing and burning pain and hunger during the night. I recently came across an article by a doctor called Dr Jamie Koufman that actually talks about that type of reflux. I also found articles on pretty severe irritation of the vagus nerve even from non erosive esophagitis. The theory is that the acid penetrates the mucosa layers all the way to the nerve even though you can't see it. I used to always get better with Prilosec but it took a long time. This december however I had eaten 40mg of Nexium and not gotten better plus I developed the nerve and brain issues. At first I thought it might be the vagus nerve but then I read that my facial tingling must come from brain because the facial nerves are in the skull. At the same time some reflux people swear the have tingling lips?
It's all so strange. Hovever I also feel dizzy and have myoclonus jerks of head when I use my shoulders etc so something is going on in my brain too.
Replies to "Yes. I had an endoscopy in January and they couldn't see anything visually wrong. I'm still..."
A couple things I want to mention…maybe another avenue or two to explore:
Median Arcuate Ligament syndrome or MALS… it’s a compression of the Celiac artery to the stomach and can cause similar symptoms to what you’re experiencing.
https://www.mayoclinic.org/diseases-conditions/median-arcuate-ligament-syndrome-mals/symptoms-causes/syc-20505001
A group discussion in our forum with other members of MALS might be worth a peek to see if this is familar to you.
https://connect.mayoclinic.org/discussion/mals-and-lower-abdomen-chronic-pain/
The other is the possiblity of a blocked Celiac artery, which a close friend of mine experienced. Her symptoms were very similar to yours and debilitating. It took some time for a diagnosis. Nothing would show up on the endoscope or MRIs. Finally a relentless honey badger of a doctor found the cause…it was a blocked Celiac artery. My friend had surgery and which brought immediate relief 2 years ago and she’s still going strong.
I’m so sorry you’re going through all of this. How miserable. What’s concerning are the other neurological symptoms your having. Have you mentioned these to your doctor as well?
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@loribmt @tinatoren my GERD is due to a hiatal hernia which I have had for many years. I have tried tapering off the Lanzoprazole (generic Prevacid) but that has not helped me to come off it. I take just one capsule before bedtime and the night I skip one, I suffer.
Yes, I too have tingling lips and have wondered why!