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Enzalutamide (Xtandi): Anyone have experience with this drug?
Prostate Cancer | Last Active: May 5, 2023 | Replies (56)Comment receiving replies
Hello friends,
My father has been diagnosed with stage IV prostate cancer that has metastsized to his back bone. He is currently on Xtandi which he has been on for 3 weeks. He is doing better than before he is able to walk better and move better. The only major concern he has right now is the Xtandi side effect of insomnia between sleeping hours (10pm to 2am). He cannot sleep but whats worse he has this empty hollow feeling (he describes it as if he is falling into an abyss). We are going to reach out to our physician. But just curious what our community thinks about this side effect. Anyone experience this with Xtandi? He is taking Xtandi 160 mg a day.
Any comments will help.
Thanks a lot.
Replies to "Hello friends, My father has been diagnosed with stage IV prostate cancer that has metastsized to..."
I took Xtandi for 26 months. Sorry your father is experiencing insomnia. I never had it. I had fatigue and some swelling in my legs. It’s a wonderful drug and if you look at the data from Prosper trial you will feel confident your father is on the right treatment. I owe to Xtandi that I have been in remission for 4 years now. Wish the best to your dad and your family.
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Hello @jonyme90 and welcome to Mayo Clinic Connect. I am sorry to learn of your father's diagnosis. I was able to find a discussion where members are sharing their experiences with Xtandi so you will notice I have moved your post here:
- Enzalutamide (Xtandi): Anyone have experience with this drug?: https://connect.mayoclinic.org/discussion/xtandi-2/
Members such as @melcanada and @markheuer have recently been discussing and may be able to come in to share more with you.
How long since starting to take the Rx did the side effects appear?