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Autoimmune Pancreatitis

Autoimmune Diseases | Last Active: Mar 21, 2023 | Replies (17)

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@ldhamh

Thanks @becsbuddy for your response and the article links. That info is what I'm finding too. My gastroenterologist and oncologist are working together. The frustrating part is that there doesn't seem to be an "approved" method for treatment as far as how many infusions, dosage, etc. Each article my wife and I read is somewhat different. I do believe Rituximab works as I have actually been symptom free for several months which is amazing. I know Mayo has done some studies but I can't find anything with specific study details. I have seen the 2019 youtube video describing their study but would love to know if they have done anything else.

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Replies to "Thanks @becsbuddy for your response and the article links. That info is what I'm finding too...."

@ldhamh I’m sorry to tell you that most “newer” autoimmune diseases don’t have an approved treatment. The doctor told me that it’s all trial and error. Darn!
Have you tried looking on Google Scholar? It has more scholarly/scientific articles.
I’m not much help, but I’ll keep asking around