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← Return to Autoimmune Pancreatitis
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Autoimmune Diseases | Last Active: Mar 21, 2023 | Replies (17)
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@ldhamh Gee, I’m sorry I didn’t see your question until today. You’re asking about the need for long-term rituximab. I posted the link about a study done on rituximab and it seems to say that it does need to be continued in order to stay in remission.
https://pubmed.ncbi.nlm.nih.gov/35041334/
Rituxan only worked for 18 months for my autoimmune disease, but for others, it continues to work well.
Here is another article:
https://journals.lww.com/pancreasjournal/Abstract/2021/11000/Rituximab_as_Maintenance_Therapy_in_Type_1.6.aspx#:~:text=Rituximab%20(RTX)%20has%20been%20proposed,patients%20with%20type%201%20AIP.
Have you and your doctors had any discussions about the long term use of rituxan?
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Thanks @becsbuddy for your response and the article links. That info is what I'm finding too. My gastroenterologist and oncologist are working together. The frustrating part is that there doesn't seem to be an "approved" method for treatment as far as how many infusions, dosage, etc. Each article my wife and I read is somewhat different. I do believe Rituximab works as I have actually been symptom free for several months which is amazing. I know Mayo has done some studies but I can't find anything with specific study details. I have seen the 2019 youtube video describing their study but would love to know if they have done anything else.