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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)
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@kelliw

Good morning-That is such great news about your walk! I can't wait to feel like that! How many mg are you on, just out of curiosity? I want to learn as much as I can before I start taking it. I'm sure my doctor will start me off at the lowest dose? Thank you!

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Replies to "Good morning-That is such great news about your walk! I can't wait to feel like that!..."
jess51 | @jess51 | Mar 18, 2023

Good Morning from the west coast.
I am on a 5mg dose for now. 5 mg seems to be a common starting dose (although I think 2.5 is the smallest dose). I had my one month "echo" 5 days ago and my cardiologist maintained the 5mg dose for me. I think that i will have monthly echocardiagrams for another couple of months and then less often. I am so grateful for Canada's socialized medical system!
All the best!

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