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Anyone have Laryngeal Sensory Neuropathy?
Ear, Nose & Throat (ENT) | Last Active: Feb 17 4:40pm | Replies (186)Comment receiving replies
Wanted to give an update on my second set of nerve block injections given by ENT at Cleveland Clinic on 3/14/23. They omitted the Lidocaine this round. I did not have the terrible increase in cough/sensitivity as first round, so that was a big relief. However, Im sad to report they have not touched these symptoms one bit. Still coughing frequently throughout my days, mornings are still particularly brutal. Havent gotten a response from my doctors yet. Not sure I'll be traveling the 3.5 hrs back to Ohio and spending another $100 in gas, for zero relief.
Beyond disappointed, once again. Last hope is for the FDA to move their a**es and approve the meds developed for specifically for this condition.
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I have had a very similar experience. Finally diagnosed after 4 yrs or so by an ENT with LSN. Played guinea pig with different meds; low dose antidepressants, gabapentin, etc. Then to a specialist in Dallas, 8 hrs away for the shots in my neck. Hated that so drove only 6 hrs away to San Antonio for more treatments of shots. None of them helped at all. After 3 sessions I quit. Finally went this year to a pulmonologist who said I had been misdiagnosed and did not have LSN, but rather asthma and COPD. Put me on Symbicort which has helped just a little. He then told me I should see an allergist, gastroenterologist and an ENT. No doubt a gastro doc will put me on a ppi (proton pump inhibitor) and no thank you for that. Been there and done that. I don't know what an allergist might do so I'm thinking of trying to find one just to see. I had no idea meds have been developed and are waiting on Fed approval. Do you happen to have any more info on that? I started this journey in 2017 and it is more than just debilitating as time goes on so I am looking for any information anyone may have. Thank you, and good luck.