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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: Mar 20 8:31am | Replies (392)
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@arlenerun

My phlebotomies have been all over the place , at one point I went 4 months without one. Another time 2 months. Is that the HU? Who knows at this point? Stay well , good luck🙏🏻

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Replies to "My phlebotomies have been all over the place , at one point I went 4 months..."
pamdg | @pamdg | Mar 19, 2023

I’m on my third year with PV. Took HU for six months before developing an allergy to it. Now on my second year taking Jakafi. Blood check every month with phlebotomy as needed. Usually two to three months. Some people are able to go much longer taking Jakafi.

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