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Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: Nov 4 11:06am | Replies (597)
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@jewelfaux

I was 1st diagnosed in November of 2022. My platelet count was 759. While taking full aspirin it dropped to 630. 500 daily HU was added in January, then platelets increased in February to 832, HU now 1000 daily (still on 325mg aspirin). I do see a cardiologist twice s year. My platelets are never lower than yours. Does the HU help you? I hope so. How old are you? I'm 74.

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Replies to "I was 1st diagnosed in November of 2022. My platelet count was 759. While taking full..."
eileen11108 | @eileen11108 | Mar 18, 2023

jewelfaux,

I was 78 when I was diagnosed in June 2022. I will be 79 very soon. My hematologist says that my goal is to be at 450 or lower for platelets.

I seem very responsive to HU. I checked my labs and I had lows of 561, 498, 434 taking 500 mg HU every other day.

I take a blood thinner for AFib so I do not have to take aspirin, I suggest you ask your hematologist if you only need to take low dose aspirin.

Best wishes, Eileen

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