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Does anyone struggle with a gnawing burning pain just above belly button, often a little to the right where the head of pancreas connects with duodenum?
The pain radiates to a dull pain in a belt that wraps around my back when I stand. I cannot be up with food in my stomach because the pain becomes unbearable! Lately also nausea after eating but not every time. Lots of rumbling. I have reflux and a hiatal hernia plus IBS and slow gallbladder.
I've suffered many years from pain above bellybutton that has come and gone but since December it has been constant and I've been more or less bedridden. I get some relief a while after eating that lasts one or 2 hours but sometimes that becomes nausea instead and it feels like I ate a soap. To me it feels like my stomach but I have never ever found a single person with esophagus or stomach problems that manifest above belly button. My pain is not under breastbone or heartburn.
For 10 years I have tried to verify what organ causes the pain but failed and now Im stuck in bed with no visual finds on endoscopy (haven't gotten biopsy back yet). No explanation on abdominal mri just asymptomatic gallstones and some fat deposits in liver and pancreas.
I never have cramps and I don't suspect small or large intestine. I would just like to find someone who have that pain pattern
Replies to "Does anyone struggle with a gnawing burning pain just above belly button, often a little to..."
Yes Functioan Dyspepsia , . Check it out. I have AFib do to Gerd anyone else been told that?
Hi @tinatoren Your symptoms sound very much like my husband’s situation a few years ago. I’ve written about his experience in this discussion: https://connect.mayoclinic.org/comment/610254/
That was 2021. My husband is now off all of his stomach meds. The FD gard and the anti-anxiety meds mentioned in the discussion really worked well for him.
It’s in a support group about Functional Dyspepsia, here’s the link: Help with stomach and abdominal discomfort when lying down
https://connect.mayoclinic.org/discussion/help-with-stomach-and-abdominal-discomfort-when-lying-down/
Hopefully you’ll find some information that’s useful with other members @riflemanz64 @rashida.
As @lvon suggested, has Functional Dyspepsia (FD) been mentioned by your gastroenterologist? Have you tried FDgard?
@loribmt @tinatoren I definitely have GERD as I get chest pain due to acid reflux. I have tried getting off Lanzoprazole but that is the only medication that he,ps with my reflux. I also have occasional stabbing pain in my upper right quadrant, just under the ribs which I just tolerate since no doctor can tell me what causes it, and ultrasounds show nothing.
I had burning in my upper intestine also even having surgery for reflux. Turns out I can't digest fiber very well and it sits in my upper intestine fermenting and causing gas and acid and bad pain and even pushes up me rib cage ! I had to cut out all fruit, most vegetables and breads, pastas, etc! I know we're told we need these foods but some people like me have a malabsorption problem for whatever reason. Once I eliminated it the pain went away almost immediately. Every now and then I eat some fruit which I love and get the pain within the next several hours! Love salads but had to cut that out also! Try the elimination diet, you may find it's your diet!
@loribmt I have mentioned it to anyone (my own physician, several specialists to whomI have been referred for various other problems, etc.) who will listen and they all just shake their heads and say they have no idea why I have this bulge. Everybody can feel it, but nothing shows in ultrasounds or the one abdominal CT scan I had. Even a colonoscopy does not show up anything. It feels like a hernia but there is n pain when palpated. Some doctors say it’s just fat, but often I feel I am carrying a sack filled with something in this area. 🤷🏼♀️ This is why I have asked my doctor several times to get me an MRI but if the radiologist says it is not necessary she has to abide by his assessment. If a procedure is deemed “unnecessary” OHIP will not pay for it. That bulge is a real mystery - I know I have rolls of fat but this feels different.
Anyway, this is something other than my GERD and the pain in my upper right quadrant (which too has no apparent cause, as the GERD does).
@tinatoren just came across this article. It may be about everything you already know - or you might find just one thing that might be of some help …
https://www.medicalnewstoday.com/articles/what-does-heartburn-feel-like?utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=MNT%20Daily%20News&utm_content=2023-03-21&apid=40904618&rvid=0eeebc8535b07c9fc9d5237ccf1a7504c119fbcb9db0ac51ef1ab33e54213fa9#treatment
Possibly a hernia in that area?
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I have pain below that area,seems possibly connected with coffee