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@mothermary1

Hi, I can write a book, I’ll try to e brief. Severe motility small and large bowel. Scheduled 2021 for colectomy changed my mind. Tests prior to surgery was stomach emptying and small bowel fluoroscopy. Had to pass to perform surgery. Had tried prior EVERYTHING to prevent surgery then just said no. When I was going to do it, they asked if I would consider Covid vaccine,wasn’t vaccinated. Surgery was scheduled September 2021. July and August received vaccines and then never did surgery. Fast forward to about 7 months ago and Gastro doc decided to start repeating tests done late 2020, third Gastro. First, did stomach emptying because not vomiting but eating smallest amount felt like huge meal and I couldn’t eat rest of day. Stomach emptying time was 17 hours yet in 2021 normal. I think vaccine because no med changes and no diet change. No sugar, no dairy and no gluten for over 2 years. Then did small bowel and it had a delay as well. All so disappointing. So I’m on erythromycin liquid, three small doses after each meal, lots of liquid vitamins including potassium prescription, every other night Philips milk of mag and amitiza that I hate because for about 3 hours I suffer labored breathing and is any of this helping no. So Friday night two capfuls Philips, Saturday morning 2 more and a day of only fluids. I’ll pass brown water all day and repeat next Friday. Another colonoscopy this May because so booked. It’s so endlessly disappointing. I have no answers except searching a forth Gastro with hope. I don’t know what else to do. I’m not removing my colon to only begin creating a knew problem. I’m 68 and I’m not doing it. I don’t have cancer slickly severe motility and gastroparesis. Wish you well…Joanne

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Replies to "Hi, I can write a book, I’ll try to e brief. Severe motility small and large..."

Have you tried linzess? Linzess and miralax were what finally got my bowels moving years ago. Luckily I was able to eventually get off of it but I do have to take magnesium, drink a gallon of water everyday, and drink prune juice twice a day. Also potatoes make the constipation worse for me so maybe it’s the same for you or you have another food that may make it worse.
Wishing you all the best!