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Liver transplant - Let's support each other

Transplants | Last Active: 11 hours ago | Replies (1623)
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@rosemarya

@rshangle, Welcome to Connect. I just finished reading your earlier post, and I want to reach out and to let you know that your medical complications are a reality for many members who have liver conditions. I want to commend you for the powerful message of strength and determination that you exhibited by your words, "Transplant is not ruled out. I just work the plan as the doc said, as others have said here." You are among friends, and we do 'get it' because anyone we are/or have experienced the same ugly symptoms.

I never had encephalopathy. but I know from the experiences that others have shared, that it is a very frightening condition. Here are some groups where members have shared their experiences with hepatic encephalopathy:

-I have questions about Hepatic Encephalopathy
https://connect.mayoclinic.org/group/transplants/
and
Hepatic Encephalopathy is discussed by members in the beginning pages of this group:
-Liver pre-transplant question
https://connect.mayoclinic.org/discussion/liver-pre-transplant-question/
@rshangle, Are you being considered for a transplant? Are you a patient at MAyo? How can we support you as you?

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rshangle | @rshangle | Mar 18, 2023

@rosemarya - thank you so much for reaching out.

I've become a big believer in support groups over the last eight-ish years, starting with my journey towards sobriety.

I'm probably at the early end of the encephalopathy scale, but even there it can be frighting and -very- disruptive mood - re: work, friends, family. I look forward to checking out the link you referenced.

I am a Mayo Clinic patient, since August 2022. I moved out to Minnesota (Northfield) in part to accept a job, and in part to be closer to Mayo in the hopes I could get in, and miraculously I did (through G.I.)

I know the docs and I would like me to be eligible for a transplant; at the moment, way before that, I need to lose about 60 more lbs (which will be about 110lbs total) to get my weight/BMI down to a level where serious complications wouldn't be a certainty. I'm doing the Mediterranean Diet, which took some adjustment but I'm doing it as closely as I can.

You all can keep doing what you're doing - it's good to be here. --Rick

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