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Essential Thrombocythemia: Looking for information and support
Blood Cancers & Disorders | Last Active: Apr 15 2:24pm | Replies (476)Comment receiving replies
Hi @jewelfaux A bone marrow test is a valuable tool for your hematologist. Since you have a blood disorder, a bone marrow biopsy (and exam) (BMBX) goes right to the blood manufacturing center of your body. A small sample of your marrow and the surrounding peripheral blood will be analyzed and examined to give your doctor a clear view of the health of your bone marrow, its ability to form healthy blood products and also check the condition of your specific blood cells.
You can often choose to have this done under a general anesthesia similar to what’s used in a colonoscopy. I’ve had 13 bmbx done…3 without anesthesia and 10 with…for the record, I’ll always have anesthesia from now on. 😉 It’s a fairly quick procedure with very little discomfort after.
Has your doctor recommended a biopsy for you?
Replies to "Hi @jewelfaux A bone marrow test is a valuable tool for your hematologist. Since you have..."
Hi! I’ve had ET for 34 years. Was diagnosed at age 21. I’ve been on hydrea for so many years without any complications. I’m starting to feel fatigue and shortness of breath even though I’m very active and feel healthy. My doctor is recommending a bone marrow biopsy to make sure I don’t have scarring. I’m a bit concerned since I’ve not had any issues but now that I’m 55 I’m worried things might be getting worse. I’m scared to do the bone marrow biopsy since when I had one 33 years ago it was awful… I’m guessing it’s a lot more improved since then. Any info anyone can give me would be great! Also I want to tell many of you recently diagnosed that you can live a normal lifestyle without complications like me for so many years!!!! I’ve really not had any side effects!! Take care!! Joni
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No, it was not mentioned. I did have three different blood tests done which showed I was JAK2 positive and not CALR positive. I do have regular (every 2-4 weeks) blood work done to check my platelet etc. numbers to see how my HU is helping.