Essential Thrombocytosis - what's your experience with Jakifi?

Posted by susanflower @susanflower, Oct 21, 2022

I am 74, diagnosed 3 years ago. Only on one baby aspiring daily. But, my itching burning skin is getting almost unbearable on some days. Dr says Jackifi is a new drug, and has good results in stopping the itching but my insurance immediately rejected paying for it. The office will appeal the decision but I really don’t want to take a chemo drug. I think it would be trading the itchy skin for side effects of chemo drug. For now, I have elected not not to take it. Platelets are 526.
How do we manage this itching? And, what will Jackifi do for me?
Susanflower

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

I had terrible itching for a while and the dermatologist prescribed Triamcinolone Acetonide cream USP 0.1% and it worked well.

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