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Liver transplant - Let's support each other

Transplants | Last Active: Jun 22 9:17am | Replies (1606)

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@kowalskik

I went thru the evaluation in September of 2022 and was put on the list the day before Thanksgiving once all of my vaccines and testing complete. I got “the call” on December 13th at 10:13pm (I will never forget). Rushed up to mayo(although they said to relax and take a breather) and checked in at the ER. They take you and your caretaker to preop. You get your iv and Covid test and bloodwork. My donor was not even yet deceased (waiting on inevitable heart failure) but it was coming. I had the surgery that day once everyone reviewed the donor liver. I was blessed to not have a dry run. I will tell you that you will seat yourself on the operating table. Prepare for that. I wasn’t prepared and it shook me. Surgery was 6 hours long but my caretakers were texted updates the entire way. I was in icu for a little bit but quickly transferred to the transplant floor. I had Cirrohsis and no symptoms until March of last year. Then…boom… meld score of 26. I was not sick per normal standards, but my liver was quickly failing. I could explain this for hours. But if you have questions, I’m happy to answer them based upon my experience. I pray for the best for you. This is a miracle.

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Just wondering if you don’t mind if I ask where did you stay after you TX.
We are in Ky so we don’t know if we should buy a condo and resell when finished or not. I feel it may be a waste to rent. I figure we get a place a few months before the 6 month mark and stay until I’m finished with frequent visits to Mayo. Wondering what others have done.