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@jbgeorge

Thank you very much for reaching out to me. And sorry for the rant but it was just crickets around here. You are the first to let me know you can have this twice. I got it when I was in the Army. It was real bad from day one. I was given a 20% chance to survive. Red cross notified my family and they got an emergency flight to me in Georgia. 120mg prednisone a day. Bone marrow biopsy and finally my platelet count jumped up to 400,000 and the blood pathologist told me 99.9% chance it'll happen to you again this is all they knew back then I guess. I went to Germany in about a month in about a month after that I started bleeding and was rushed to the hospital and once again given another 20% chance to live and was slow to respond and they finally got my platelet count up where they could do an emergency surgery Red Cross flew my family out to me again and remove my spleen in that cured my disease. But I started having very serious mental health issues due to I think and what they told me prednisone and I still have you know mental health problems have ever since then.

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Replies to "Thank you very much for reaching out to me. And sorry for the rant but it..."

Crickets…you only want to hear them on a warm summer evening. ☺️ It’s not often there isn’t a member jumping in to share their experiences.

Your first experience with ITP was certainly frightening! That was a very hefty dose of oral prednisone, twice the daily upper dosage in today’s standards. I have no idea if that caused the mental health issues. But when I was hospitalized for a serious inflammatory spine issue I was on 1,000 ml daily IV for a couple of days was warned about the side effects…one of which were hallucinations. They were pretty intense.
I’m so sorry you’re having continued problems after your experience.
With this second onset of the blood disorder, are you back in the states? Do you see a hematologist?