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DiscussionDiagnosed with CLL and ITP together! What can I expect?
Blood Cancers & Disorders | Last Active: Mar 16, 2023 | Replies (12)Comment receiving replies
Replies to "Thank you very much for reaching out to me. And sorry for the rant but it..."
Crickets…you only want to hear them on a warm summer evening. ☺️ It’s not often there isn’t a member jumping in to share their experiences.
Your first experience with ITP was certainly frightening! That was a very hefty dose of oral prednisone, twice the daily upper dosage in today’s standards. I have no idea if that caused the mental health issues. But when I was hospitalized for a serious inflammatory spine issue I was on 1,000 ml daily IV for a couple of days was warned about the side effects…one of which were hallucinations. They were pretty intense.
I’m so sorry you’re having continued problems after your experience.
With this second onset of the blood disorder, are you back in the states? Do you see a hematologist?