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Transplants | Last Active: Mar 18, 2023 | Replies (29)
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I got my transplant 3 months ago today. I was diagnosed with a failing liver 1 year ago today. It’s crazy how fast things move when you need them to. I cry a lot. I get angry. I have the setbacks. And I’m 43 years old and not capable of this stress either. I joined transplantlyfe as well. It’s online and someone you feel a connection with will usually chat with you along the way. I’m happy to do so if you have questions. I wish you the best of health and happiness. You are capable of amazing things. Congrats on 2 months! Those are the HARDEST!!
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@kowalskik, I want to say Congratulations on your 3 month anniversary! I'm glad you found Connect, and I extend my hand in a virtual handshake of Welcome and support.
You have been through a lot over the past 15 months from diagnosis to failing liver to transplant to recovery, plus all of the worry and facing an unknown future while your health was declining.
I hope that your journey begins to take you on a calmer path as you progress to a more normal life.
I am quite a few years older than you, and I had my transplant since 2009. I can still remember how easily it was for me (and my husband) to break out in tears unexpectedly. Over time the tears will diminish, but I'm not sure that they will ever disappear. At least that is what it is like for me. I feel especially sensitive and teary eyed during the anniversary of some transplant related events. The past few weeks were the anniversary (for lack of a better word) of my being in ICU at my local transplant center with end stage liver failure, acute kidney failure and possible cancer in bile ducts. I was flown out of ICU to Mayo Rochester while wondering if...(you get it). The tears, tempered by the gratitude for my amazing anonymous donor for saving my life make for a moody me. With that behind me, I am once again ready to roll up my sleeves and face life to the fullest, again. So when I saw that you have just experienced 2 big events, diagnosis and 3 month anniversary, I can't help but wonder of this has an effect on you like my event had an effect on me.
You are the age of one of my sons, and I am going to tell you, just like I would tell him. Tell your transplant nurse or doctor about the stress and the anger that you are feeling. I think it would help you a lot to learn from your team whether your meds need adjusting. You might benefit from a short term medical intervention because it could be related to the trauma of the transplant surgery. Have you spoken to your transplant team about your emotions like the anger and stress that you are experiencing? Will you have a 4 month check-up coming up?