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Liver transplant - Let's support each other

Transplants | Last Active: 11 hours ago | Replies (1623)

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@rosemarya

@charliepuma, I'm wondering if you saw the response that I posted a few days ago. I understand concern and uncertainty about reading that chart. I caution you to keep in mind that a chart is a data/numerical reference. And it does not indicate a true picture of an individual patient's mortality which can be frightening. I hope that you will discuss this with your medical team. When will you be able to talk to your doctor about your concerns?

@mbentley, I am in Danville. I was originally listed at UK, but when my PSC (Primary Sclerosing Cholangitis) turned ugly, I was referred to Mayo in Rochester. In fact I was flown out of ICU and my husband and I lived in Rochester at the Gift of Life transplant House from late Feb - late May 2009. We drive the round trip annually for my yearly check-up.

@lindsay208, Welcome to Connect, and to the Liver Transplant support Group! We are all here to learn from each other by sharing our experiences, and I know that very soon, you will find yourself surrounded members who are here to support you.
I would suggest that you settle in a comfortable chair, and scroll back to Feb 1 of this discussion. You will soon realize that you are not alone and you can read, react with emoji, or engage in conversation.

Lindsay, What questions do you have? How can we be of assistance to you?

Here are a few additional Support Groups related to Liver Cancer:
-Liver cancer: I'm weighing treatment options including transplant https://connect.mayoclinic.org/discussion/liver-cancer-1/
-Anyone waiting for liver transplant and diagnosed with liver cancer?
https://connect.mayoclinic.org/discussion/liver-transplant-6/

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Replies to "@charliepuma, I'm wondering if you saw the response that I posted a few days ago. I..."

Yes I have NASH with HCC. Going to Jacksonville Mayo.

Thank you for the helpful comment and the links.

Lindsay