← Return to Essential Thrombocytosis - what's your experience with Jakifi?

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@nohrt4me

Sorry, I didn't quite follow this. Does your husband's doc think the jump to 1,000 was caused by covid infection? Then, with treatment, it fell back to normal?

What is rituximab? Another JAK inhibitor like ruxolitinib/Jakafi?

I have not had covid and am CALR+ (not JAK2), but something I will ask my doc about. Thanks for posting.

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Replies to "Sorry, I didn't quite follow this. Does your husband's doc think the jump to 1,000 was..."

@nohrt4me
Oncologist currently is thinking my husband's low platelet count is a result of his being sick with Covid at the end of Dec, 2022. He never had a problem before then. A normal platelets count is between 150,000 & 450,000. He was admitted to hosp because his platelets count was at 1,000. That is VERY DANGEROUS. The doctors were shocked that he hadn't begun to bleed anywhere in the body, even inside from organs or from the skin, or even nosebleeds. The blood would not have clotted & high chance of death. In the hosp he was given iv platelets & antibodies, plus steroids. When his Platelets went to normal at 152,000, they sent him home. A couple weeks later, it dropped again & has stayed low (29,000, then 62,000, then 36,000 yesterday.) He's had 4 IV infusions of Rituximab, which to my understanding it is antibodies. I'm not savvy on medical terms or names of meds. Feel free to Google the med, that's what I always do.

@nohrt4me
I looked up your CALR, too many blood cells? Is that correct?
My husband's cell count is ok, just the platelets are way off. Thrombocytopenia is what he has. I hope & pray you get better as well as my hubby.