← Return to Chiari Malformation type 1

Discussion

Chiari Malformation type 1

Brain & Nervous System | Last Active: Apr 6, 2023 | Replies (146)

Comment receiving replies
@nancy82415

@macw I had my surgery at the Mayo Clinic Rochester Campus 7 1/2 yrs ago. My neurosurgeon and my entire medical team were and continue to be phenomenal!!! I consider them part of my family!!! ❤️❤️ I look forward to seeing my medical team every year for my annual checkup!!

Sending prayers to you for peace and comfort during this time. Praying your daughter has a speedy and successful surgery. 🙏🏻

Jump to this post


Replies to "@macw I had my surgery at the Mayo Clinic Rochester Campus 7 1/2 yrs ago. My..."

Thank you so much!!!! I so appreciate
Your responses. I have never been so scared in my life. This gives me hope and inspiration. There have been so many times that I have wanted to back out but I think for her long term health this is the right decision. Once we are through this I hope to offer support to parents who have a child with Chairi. It is so nice to hear from someone who has been through it. Any advice would we greatly appreciated!!