Looking to connect with people who have non-diabetic neuropathy

Posted by Ann broussard @user_ch98d0b5c, Aug 6, 2018

Would. Like to find people with this issue

Interested in more discussions like this? Go to the Neuropathy Support Group.

@treetop

Seems the B vitamins help the most for painful neuropathy, in order they are. B-6 #1, B-12 #2, B-1 #3. But there are different forms of each. Check Nerve Doctors on You Tube. Neuropathy Pain is like s ghost, the way it affects your body, it comes in many forms, from burning to stinging to pin pricking and on it goes. Mine caused by anti-biotics, chemotherapy and radiation.

Jump to this post

Thank you. I need all of the help I can get. You would think with all of the medical advancements they could figure this out.
Thanks,
Conrad

REPLY

Do any of you take Pregabalin? If so, what strength? amount and how often? Thanks

REPLY

Got CIPN five years ago. I may now have some other type of neuropathy in addition to CIPN, possibly enteric neuropathy (GI tract). Started getting foot drop a few months ago, now am getting hand drop. I am in head to toe distress all day until I can get to sleep. Doing what I can with limited resources but my condition seems to be rapidly deteriorating. Looking for a courage pill or a nervous system transplant (🤒). Details are in my posts.

REPLY
@chifney

I have lumbar spinal neuropathy. Gabapentin & Duloxetine have provided some relief.

Jump to this post

What test exactly tells you this ? Is this onL5,S1 disc?

REPLY

I take Duloxetine for anxiety, but it's also good for neuropathy. I also take Gaba pentin 600mg before bed along with a good strong hit on some weed! It makes me forget about the burning and numbness of my feet. They feel pretty good in the morning and most of the day until late night...that's when I take the same thing as before!

REPLY

I wish I could do that but I live in South Carolina and weed is illegal.

REPLY

I take 600 mg of gabapentin and 220mg of Alive before bed and it helps alot.

REPLY

I have idiopathic small fibre neuropathy and have a chronic itch has anyone any ideas to calm this itching????

REPLY
@lorettogibbons

I have idiopathic small fibre neuropathy and have a chronic itch has anyone any ideas to calm this itching????

Jump to this post

Welcome @lorettogibbons, You are not alone with the chronic itching. You might want to read through this existing discussion on the topic to learn what has helped others:
--- What do you do for Neuropathy itch?: https://connect.mayoclinic.org/discussion/what-do-you-do-for-neuropathy-itch/

REPLY
@johnbishop

Welcome @lorettogibbons, You are not alone with the chronic itching. You might want to read through this existing discussion on the topic to learn what has helped others:
--- What do you do for Neuropathy itch?: https://connect.mayoclinic.org/discussion/what-do-you-do-for-neuropathy-itch/

Jump to this post

Thank you very much for information,

REPLY
Please sign in or register to post a reply.