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Persistently Elevated Platelets Fluctuating

Blood Cancers & Disorders | Last Active: Mar 28, 2023 | Replies (18)
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@annasw

Thank you for sharing. It seems I’m at the age where it started for you. It’s fascinating that it took so long for them to rise above that million threshold. I do try not to worry, but t is frustrating to not have answers. I actually feel much better after beginning treatment for a severe vitamin D deficiency. One day at a time I suppose.

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Replies to "Thank you for sharing. It seems I’m at the age where it started for you. It’s..."
Colleen Young, Connect Director | @colleenyoung | Mar 26, 2023

@annasw, any update?

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springer44 | @springer44 | Mar 28, 2023

Did you ever get tested for celiac disease? I have high, fluctuating platelets like you along with anemia and celiac disease. The high platelets were found during a routine annual checkup about six months ago. My platelet count was over one million, but has been controlled, albeit erratically since I started taking Hydroxyurea (Hydrea). Are you taking Hydrea? I get my blood tested weekly and my platelet count has bounced between 450K to 900K.
Early on I took iron pills to try to alleviate the anemia, but my platelet count skyrocketed, so at my oncologists advice I stopped taking them. She indicated that it may be safe to take iron pills if I can get my platelet count closer to 400K. I'm hoping that switching to a gluten free diet may increase my iron absorption and possibly moderate my platelet production.

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