Good morning, Howard. I’ve only been able to find one reply with a member who had treatment with Inqovi. Here is a link to the conversation with @littlelindysue about her experience…it looks as though that wasn’t working for her so she went onto another treatment because of her type/classification of MDS.

https://connect.mayoclinic.org/comment/656252/
(The entire discussion on Myelodysplastic Syndrome (MDS): how to increase red blood cells?) is posted here:
https://connect.mayoclinic.org/discussion/mds/?pg=2#comment-656252

Because your other Inqovi questions have been buried in other conversations and maybe not being seen, I’m going to suggest that you start a new discussion about the treatment.
Then maybe more people would see that message when they search and can give you some insights.

Go to this page of the Blood Cancer Group
https://connect.mayoclinic.org/group/blood-cancers-disorders/

You’ll see a box that says, Start New Discussion.

You could put this in the heading: Inqovi for MDS. What’s your experience?
Then give a little description that says you have MDS and are starting Inqovi. You’d like to hear from others about their experience while on this treatment.

Let’s hope you get some members jumping in to give you some encouragement. It’s always a little scary starting a new medication. I was a walking pharmacy for a while so I can appreciate your anxiety. But the meds were a means for me to keep on living and enjoying life.
I’ll be thinking about you Monday. I looked up the medication and it looks like there is one pill per day for 5 days. Then you’re off for 3 weeks. It can possibly make you a little nauseated.
Did your doctor prescribe any anti nausea medication for you such as Zofran? (I used the Zofran sublingual tabs. They melt quickly).

Hi Howard…thinking about you this morning as you start your new treatment! I know how scary it is taking that first pill…but it’s a means to getting your MDS under control!
So, bottom’s up…that sounds odd now that I see it typed out. My dad used to say Bottoms Up all the time when I was a kid such as when he drank a toast or if I had to take medicine, finish my milk, etc. hahah I digressed…sorry. Anyway, I just wanted you to know I’m here for you if you need to talk about your meds, how you’re feeling. Keep me posted ok? ☺️