I was diagnosed 1.5 years ago with chronic Epstein barr. Now I have chronic fatigue and recently I’m having osteoarthritis in my hands which I’m told is hereditary by my doctor I’m have I numbness in my finger tips now. Sometimes I find it hard to remember words and my stress and depression do not help. I am on two kinds of drugs for energy Xanax and antidepressant high blood pressure thyroid meds corticosteroids high cholesterol , meds for restless leg syndrome and hormone replacement . I have days I can feel the swollen lymph glands in my throat. I only see one doctor and the diagnosis took 2 years . Yes if I have too much stress my muscles tighten up especially the back of my neck. Trying to do too much brings on stress not doing enough brings on stress. The fatigue is frustrating due to I’m not a set around and relax person . I will burn myself out doing too much and can sleep around 12 to 15 hours when this happens . Concentration on small
Details has become frustrating. I had just completed my 4000 hour internship
and acquired my associates degree and license for LCDC counseling while I kept getting sick over and over with upper respiratory and asthma. The I was diagnosed with mono and within a year I had mono twice and finally I was sick for 3 months with my blood count way past anything normal
Within testing range . I know I’m blabbing away but this is the first place I’ve found with people. Who are experiencing the same diagnosis and due to its rarity I have been alone with what I’m going through . I have a great family but unless you have this it’s impossible to understand all the symptoms,, side effects from the drugs , and never knowing if today will be a good day or a just let me sleep day .