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@eileen11108

Hi, welcome to the site. You have not said if you have been to a hematologist. If so, did they do extensive labs and bone marrow biopsy?

Good luck, Eileen

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Replies to "Hi, welcome to the site. You have not said if you have been to a hematologist...."

Yes I’ve been to my local specialist hematologist and to a hematologist in Houston as well. They have done so many labs. They haven’t done Jak2 genetic testing because insurance won’t cover it. Have suggested bone marrow biopsy to rule out cancer but both hematologists said they don’t think it is, they think it is reactive to something no one can put their finger on, so I have declined bone biopsy for now.