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Phrenic Nerve damage and paralyzed diaphragm: Anyone else have this?
Lung Health | Last Active: Jul 10 3:56pm | Replies (198)Comment receiving replies
My brother had a double lung transplant a year ago. He has been hospitalized except for 3 weeks . His Phrenic nerve was damaged, he has a trach, on tube feedings, has had Klebsiella twice, CMV, told a couple weeks ago he was in acute rejection and was treated twice with IVIG. Now they are saying he has Chronic rejection, before that they said he had AMR. His kidneys have also failed due to all the meds and problems. He has fought so hard to live. Now he is getting rATG. He has been told nothing can be done for his diaphragm or Phrenic nerve. Please advise. He has suffered a lot but continues to fight to live.
Pam
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Your poor brother. I'm so sorry he is going through all this! After damage to the phrenic nerve, most doctors recommend waiting up to 2 years to see if the phrenic nerve will repair itself before thinking about doing anything else. If the damage occurred a year ago, it still might heal itself. He is lucky to have you in his corner. Best wishes to you both!