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Transverse Myelitis & Side-effects
Brain & Nervous System | Last Active: Oct 19 10:02pm | Replies (21)Comment receiving replies
After 7 months of treatment and therapy for Guillain-Barre Syndrome, my Neurologist changed my diagnosis to Transverse Myelitis because of total leg stiffness, bowel and bladder issues and joint pain. Has anyone found effective treatment for total leg muscle stiffness other than muscle relaxer which lowers my blood pressure too much?
Replies to "After 7 months of treatment and therapy for Guillain-Barre Syndrome, my Neurologist changed my diagnosis to..."
Hello @timr71 ,
I am so sorry to hear that you are suffering, but hope someone here can help. I was diagnosed with GBS 50 years ago, and then they also decided it must be TM due to the long term numbness bladder and bowel problems. The fisiculations never went away, but I never had any large muscle rigidity (still get plenty of spasms). I can only hope you find something to help, or if you are young enough, some time for more healing.
Good luck, you are not alone.
Hello @timr71, and welcome to Mayo Clinic Connect. You will notice that I have moved your post into an existing discussion on Transverse Myelitis which you can find here:
- Transverse Myelitis & Side-effects: https://connect.mayoclinic.org/discussion/heide-germany/
I see that members @pacer3702 and @hoytpr have joined you to share some information.
Here is some information that you may find helpful:
- Transverse Myelitis - Diagnosis and Treatment: https://www.mayoclinic.org/diseases-conditions/transverse-myelitis/diagnosis-treatment/drc-20354730
Have you tried physical therapy, which is one of the options listed?
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I'm sorry for what you are suffering. I developed sensory and motor peripheral neuropathy after the Pfizer vaccine. There was evidence of dorsal root ganglion (spinal) involvement because the nerve pain and numbness in my feet and calves were greatly aggravated by sitting, which is not typical of peripheral neuropathy. I discovered that I could greatly reduce the pain and numbness if I completely avoided sitting. My initial neurological symptoms were stiffness in my calves and muscle spasms in my toes. The only thing that relieved the stiffness was myofascial release massage. My impression was that it also facilitated my recovery by relieving the compression on my nerves due to the stiffness. Mostly, the stiffness improved with time, as I recovered from the vaccine injury.