Description
Esophageal Cancer Support, Inc. (ECSI) hosts monthly virtual meetings with interactive presentations by subject matter experts followed by group discussions. The meetings are open to all affected by esophageal cancer, including caregivers, at any phase of treatment or recovery. Topics have included nutritional and emotional support, symptom and disease management, clinical research and surgical developments. Monthly meetings are the third Friday of the month beginning at 12:30 p.m. ET.
Register in advance here:
https://zoom.us/meeting/register/tJUudu6hrz0sHtPzBiO11Lw-iUiimZ862oOm
Location
Zoom
Contact
Kristi Uhland
904-509-6910
kristiuhland4@gmail.com
I had a “j-tube” installed into a segment of my small intestine, with the outlet being a 6+” tube that nightly I would connect to an IV bag that I would fill with a chocolatey-looking thick liquid that would be pumped into me via the j-tube. BTW, the liquid was my ONLY source of nutrition…and I was tempted to sample it on my finger! Bad, very bad idea. It was NOT intended for consumption by mouth. Horrible taste! The experience was a bit stressful. Before and after each use I had to flush the line. If ever any liquid stuck in the tube and dried, I was at serious risk of not getting my daily nutrition. That happened a few times, resulting in my being ambulanced to hospital to clear the clog. I lost 40 lbs during this period. That was OK, ‘cause I was overweight at the start. When the last container of nutritional supplement was completed, I consumed a quart of lemon sorbet by MOUTH as a celebration that I could return to normal food.
Thank you for the information and doctor's name.
Much appreciated.
Yo fui intervenida quirúrgicamente con una esofagectomia Ivor Lewis en mayo del 2020. Hoy estoy en remisión y aunque no ha sido fácil estoy en pie dando gracias a Dios. Muchas bendiciones para ti y nunca pierdas la fe.
View Translation
Muchas gracias Mandy.
Thank you very much. Continue to be well and blessed.
Hi. I had the surgery 2 years ago. They went in through my back and side. I also had a couple incisions in my chest and stomach. I'm still here, cancer free. I wish you well.
Thank you, how long was the surgery and your post surgery/recovery?
My surgery went well. No complications. Just had my 2 year anniversary and no sign of cancer. It's been a long haul with various issues but every day I get better. My surgeon said I have a very small chance of it coming back...he was really happy. I am carrying on with life and enjoying myself. Stay positive and everything will be fine. Have a nice day!
Thank you