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Liver transplant - Let's support each other

Transplants | Last Active: 1 day ago | Replies (1617)
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@parrot53

@livertex
I see this is an older post. Wondering how you are. I am in a similar situation with a low MELD score of 8. I am on the TP list as I have had ablation of a liver tumor believed to be cancer. Currently feeling fairly well although fatigued and having insomnia. I would love to know how things progressed for you. Thank you if you are still active here and able to reply.

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Replies to "@livertex I see this is an older post. Wondering how you are. I am in a..."
Rosemary, Volunteer Mentor | @rosemarya | Mar 13, 2023

@parrot53, I'm happy that you have discovered the vast amount of wisdom and experiences that are 'hidden' in some of the older posts. Sometimes members post one time, and sometimes they become engaged in a continuing conversation that is beneficial and supportive. I noticed that you intended for your question to go to particular member. Please allow me to insert the correct contact @name for @livertrex

I remember the fatigue and the insomnia as part of my pre transplant period, and I hope that you continue to feel fairly well. In my opinion that is an accurate description for the changes that, in my situation, came on gradually. Fortunately, my GI was on top of it, and guided along the way until I needed to be referred to the transplant center in my region.

If you are wanting to meet others who have experienced long waits and wondered about MELD score, I want to share this discussion. It is long and it does veer off topic, however it is filled with real experiences.
-It's not all about the MELD Score
https://connect.mayoclinic.org/discussion/its-not-all-about-the-meld-score/
Parrot -
Are you being monitored by the transplant center where you are listed? How does the possible cancer affect you transplant listing? Is any treatment or chemo required?

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