Suggestions needed re questions to cover in upcoming appointment

Agree that you should avoid taking up time with problems with the prior treatment, just move along from where you are. An exam by your personal physician couldn't hurt as long as it doesn't delay your consultation. Most important at this point to know what your options are, risks and benefits of treatment recommendations. Highly recommend you have your own records with you. Good luck with your consultation.

Thanks for the advice. I'm still mulling over the conversation I had yesterday.
I do hope to be able to do at least one useful thing resulting from many of the comments here as well as this particular appointment.

There seems to be a wealth of knowledge about how patients navigate these difficult treatment straits, which now seem to find a repository only in what our oncology nursing staff hear and remember. This potentially helpful information currently seems to reach patients who look for answers and hints of answers elsewhere. I can't help thinking that making this wisdom available routinely in the local setting, would be helpful. The best example I can think of is that I learned about "Chemo Brain" and Chemo Feet and Hands" from one of the Infusion Center nurses; it was not mentioned by my oncologist.

I'd like to propose some way of preserving this experience through a semi-formal mechanism that could be made available to new patients. I have in mind two individuals who might be helpful to move such a project through the local system. One is a nurse who wrote for a grant to help provide headphones for the TVs in each infusion cubicle, so that other patients wouldn't be aggravated and the nursing staff could hear themselves think and manage the phones! The other individual, if a physician champion would be helpful, is a colleague of decades standing, who I know has a good heart.

I am grateful to those with the good hearts who are helping me. It's wonderful that you have a colleague of decades. The internet is an amazing place, making resources available that could never be done locally

I strongly suggest, with the doctor's permission of course, recording every important doctor session on your phone. I use a free, easy to use one called "Easy Voice Recorder". This has been incredibly value for remembering all the options and nuances of every part of the discussion with the doctor. We also prepare our questions in advance in writing. The recording allows us to listen and reference out questions without having to take notes on answers. We have found this very helpful throughout the journey . No doctor has said "no" or been offended.

Agreed. Definitely record your Dr visits! There is so much info it can be overwhelming & impossible to absorb it or remember all.

Which university hospital are you at?