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Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Blood Cancers & Disorders | Last Active: Nov 15 7:18pm | Replies (329)
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@elainejarrett

My labs are holding steady. Would you be able to connect me with someone who is dealing with non Hodgins monoclonal low grade B cell lymphoma/leukemia. Spleen is enlarged but oncologist said she has seen better and worse😳. Thanks for asking.

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Replies to "My labs are holding steady. Would you be able to connect me with someone who is..."
Colleen Young, Connect Director | @colleenyoung | Mar 12, 2023

@elainejarrett, I believe that @jeremy17 also has low-grade B cell lymphoma. Fellow members like @scsimpson @stanleykent @tallyteresa also have experience with enlarged spleens related to blood cancer.

Does your oncologist suggest having the spleen removed or continue with active surveillance?

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lila1 | @lila1 | Jul 3 6:49am

Hi Elaine, I have same if you want to connect. Also on W&w. How are you doing?

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jam1962 | @jam1962 | Nov 4 11:06pm

I have non Hodgen’s B cell Lymphoma. My spleen was up to 21 cm. Treated with Rutixmed for 4 infusions. Cancer was/is predominantly in spleen and partial bone marrow.

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