Have you seen a hematologist and had a bone marrow biopsy? That is how my AL Amyloidosis was diagnosed. It is a rare plasma cell disorder that is a "cousin" to Multiple Myeloma. There are other discussions about AL Amyloidosis and you can find them by doing a search of "Amyloidosis" in this Blood Cancers and Disorders category. Going to a large center with experienced specialists in the field of Amy/MM may be your best bet. Hope this helps!