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Staying strong and facing an uncertain /certain future

Caregivers | Last Active: Jun 22, 2023 | Replies (60)
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@valandsheri

Hi Lori! Mr.. Ray of Sunshine had his 2nd round this week. Had a bit of a reaction to the Rituxan 7 minutes before the bag was empty. Go figure! He got cold so they stopped the infusion and while waiting for him to warm up his back started getting sharp pains. Holy cow! Out came the emergency kit! A dose of Pepcid and Demerol and a little delay and he was back in business. Whew knew🙄? Everything else was good - blood work, appointment with the PA and the chemotherapy. He's feeling tired, but, still doing stuff. I'm still the Queen of Temperature Taking - both his forehead and the meat😉 and Mr. CRABBY Pants has not been around, only Mr. Ray of Sunshine. For now🤣 one Day At A Time literally. 🤣 Hope you are doing well!!

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Replies to "Hi Lori! Mr.. Ray of Sunshine had his 2nd round this week. Had a bit of..."
Lori, Volunteer Mentor | @loribmt | Mar 13, 2023

Good morning! Sorry for the delay; We were on the road the past 3 days but now home and getting settled again. Tough waking up this morning in Wisconsin…we were in FL for a few months and returned home to 8 inches of snow…won’t be going barefoot through that white stuff today! 😅

Happy to hear Mr Ray of Sunshine is still beaming happiness throughout his kingdom. Hopefully that won’t dim in the middle weeks but if so, he knows it’s temporary and the clouds will part again. 🙃 It’s really encouraging to see that all his numbers are looking great! That little setback with the Rituxan isn’t unusual. I had a few too…the moments are dealt with and then it’s over. Mine always seemed to be from infusion rate edging up too quickly. So we’d slow it way down and I’d watch a movie.

Had to laugh a little when packing up to come home. I cleaned out a drawer in the bathroom and grabbed the little bag with ‘medical stuff’…thermometer! Your “Queen of Temperature Taking” actually popped into my head…just don’t get the meat thermometer mixed up with the other one. 😂

Thanks for checking in!! I need to find boots, socks and warm jackets again. Ho hum…

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