Concerned about the side effects of anastrozole

Posted by tinalove @tinalove, Jan 31, 2016

I completed all treatments for breast cancer but now I am supposed to take hormone blocker, named anastrozole. im concerned about the side effects. Has anyone here taken it and did anyone have hair loss?

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I have been taking Anastrozole for 6 or 7 months. No real problems other than some hot flashes. However I have gained weight in my stomach. I have always been thinish and am 77. I go to the gym 3 times a week. Is weight gain due to age or meds. Anyone else had a problem with this. Thanks to all for hugs. Have a blessed day. By the way a floppy stomach is fine over cancer.

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@jeanr3

I have been taking Anastrozole for 6 or 7 months. No real problems other than some hot flashes. However I have gained weight in my stomach. I have always been thinish and am 77. I go to the gym 3 times a week. Is weight gain due to age or meds. Anyone else had a problem with this. Thanks to all for hugs. Have a blessed day. By the way a floppy stomach is fine over cancer.

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@jeanr3 love this: "By the way a floppy stomach is fine over cancer."

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@rosy54

I was on Anastrazole for
5 yrs I never found a problem with side effects because of memory issues I was taken off it ( usually after 5 yrs normally taken off )

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oh my, at 77, I worry enough about memory issues. Hope this isn't something I need to think about.

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@jeanr3

I have been taking Anastrozole for 6 or 7 months. No real problems other than some hot flashes. However I have gained weight in my stomach. I have always been thinish and am 77. I go to the gym 3 times a week. Is weight gain due to age or meds. Anyone else had a problem with this. Thanks to all for hugs. Have a blessed day. By the way a floppy stomach is fine over cancer.

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I do have a bit more of an abdomen. Going to discuss it at my oncology appt early April. I’ll post.

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@anjalima

I do have a bit more of an abdomen. Going to discuss it at my oncology appt early April. I’ll post.

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I will post also if I find out more. I have never had this problem before even after having children.

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@jeanr3

I will post also if I find out more. I have never had this problem before even after having children.

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I think I have read this from much earlier posts when I first noticed and became concerned. Maybe others will relate their recent experience with this also. 🌸

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@cindylb

Hello Samy
I tried Tamoxifen when I was first diagnosed (when I was pre menopausal) and my blood pressure, which is normally low shot up to really high levels and I had constant headaches. They took me off of that and 2 years later I had Stage 1 invasive cancer. Would the tamoxifen have stopped that? I'll never know. Following bi lateral mastectomy for Stage 1 invasive lobular I first tried Letrozole. I had severe depression (which is what was the worst for me), pain in my hands and wrists and knees almost immediately. I was on it two weeks when I developed Shingles (at age 59) and was quite ill from that. The doctors and I agreed that I should stop Letrozole and try Arimidex, which I did. Arimidex was just as bad, perhaps a little worse and after 3 weeks on it (including trying every other day) I had the usual symptoms and blood in my stools. At that point the doctors said I was 'lower risk' and the drugs were causing side effects that could be severe. Once I stopped the drugs I had no joint pain, no depression (except for the usual......I have cancer and this sucks) and my health improved dramatically.
At my last 6 month follow up (with a new oncologist) I brought up using the drugs again and he said, you are low risk and the side effects, for you, are not worth it. If you get a recurrence you will have to take them but for now, 3 1/2 years in, I am not using them.
I really didn't want to take the drugs because I'd read up on the side effects but I was willing to give them a try and see how I reacted because I sure don't want cancer. Many people will have side effects but you won't hear much from those who don't have side effects, they simply move on, so it's hard to judge. I am 61 now, so I was 56 when first diagnosed (5 years ago) and am 3 1/2 years out from the surgery.
I will say this...............it's overwhelming and physically and emotionally draining with breast cancer treatment. There is no rush to start the drugs I know of (?) If you are at that point and want to wait 3 months or so to regain your strength, ask your doctor if that would be ok? That way you can start at your strongest point and judge the pills then? I went right into the pills while I was still recovering from surgery and lymphedema and all sorts of stuff. That might have taxed my body as well.

When I was diagnosed, had surgery, etc........it all happened pretty fast. I didn't have much time to process so I was beat up really. I did consider my quality of life because I didn't want to feel sick for another 5 years because I hadn't felt sick at all prior to the diagnosis (I think that's often true of all of us). I was also concerned about having side effects like bone loss and then having to take pills for that, having a hear condition caused by the pills and then having to take pills for that, etc....it can be a cascade of pills and unfortunately I think that's how a lot of doctors approach this. Remember, an oncologist is there to treat and cure cancer and not all of them see the bigger picture of treating or curing the cancer and leaving the patient with osteoporosis, heart disease, etc..... Some do, but not all.
This is NOT an easy decision..........see if your doctors will allow you to process this for a while or give the pills a chance and we'll all keep our fingers crossed that you're one of the lucky ones with few if any side effects!!
Hugs

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Hi Cindy,
I am new to the forum so just seeing your story. I really appreciate you sharing your experience and hope that you are doing well.

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@jeanr3

oh my, at 77, I worry enough about memory issues. Hope this isn't something I need to think about.

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Not been an issue for me at all.

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@jeanr3

oh my, at 77, I worry enough about memory issues. Hope this isn't something I need to think about.

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Please don’t worry about getting same side affects as others may. It’s good to hear what side affects are possible. Everyone reacts differently but I feel it’s reassuring how others reactions. I feel at ease that my symptoms are possible to get.

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ty for your input. At my age we are all searching for words and helping each other. So in reality I probably am not having any more problems than usual. BUT now I can blame it on something. LOL We are all blessed to be here and still communicating.

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