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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)

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@4chriscraft

I’ve been living with it since 2010 and it’s amazing how many professionals have never heard of it. I continue with my blood work every six months. My oncologist suggested that I do a bone marrow test to see if we could identify a link to what type of cancer my MGUS would produce (not sure if I’m saying this correctly) but luckily there was no dna links. My numbers have remained pretty stable over the years but it can cause a lot of anxiety while your waiting for your results.

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I would also say, whenever you have to deal with any medical event ie, new specialist, ER doc or anytime you get a X-ray, CT scan etc, tell them you have MGUS. They will play more attention to your bones and will alert you of concerns.