1. < Chronic Pain

Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

jtstark | @jtstark | Mar 8, 2023
In reply to @rwinney "Hi Terrie @terri61, welcome to Connect. Congratulations on moving forward and being accepted at Mayo Clinic,..." + (show)
@rwinney

Hi Terrie @terri61, welcome to Connect. Congratulations on moving forward and being accepted at Mayo Clinic, and looking for help beyond the bandaides. Are you meeting with spine surgeons or Mayo's Pain Rehabilitation Center?

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I wished I could have some type of rehabilitation, I'm sure it make me stronger and I also like being pushed. But at the end of the day I just have a pain pump and medication for severe back through pain.

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1 reply
finny4606 | @finny4606 | Mar 10, 2023

Hi, I’m Finny4606 and I was diagnosed with CRPS by my pain management dr about 2-1/2 years ago, only I only have 1 symptom, then my second doctor said I was misdiagnosed. He sent me to a spine specialist who wants operate on my cervical and lumbar spine. I would really like to get a definitive diagnosis. I’m waiting to hear if Mayo will accept me.

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3 replies
juliesmhunt | @juliesmhunt | Mar 11, 2023
In reply to @rwinney "Hi Julie, I'm sorry you struggle with chronic pain. What sort of pain management plan do..." + (show)
@rwinney

Hi Julie, I'm sorry you struggle with chronic pain. What sort of pain management plan do you have in place besides strong medications that aren't working because you've grown immune? Have you ever considered weaning off heavy meds and implementing lifestyle changes like cognitive behavioral therapy, coping strategies, exercising, stretching and stress-management for example? I was using opioids for chronic pain and they got me nowhere. I eventually had had enough of strong meds and made a change. You are a youngster still! Sometimes, being so tired of being in pain may be a signal to make a change. What changes can you see yourself making to better your cause?

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Hi Rachel thx for your input much appreciated yes I've tried doing some exercises but the next day I can't move I suffer longer & harder afterwards actually my spine is what they call a 90yr olds spine I also suffer from palette alta (something like that) some days it takes all I've got to go to the bathroom I truly feel like I'm 40yrs past my real age....sad hurting & depressingly hopeless....

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1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Mar 11, 2023
In reply to @finny4606 "Hi, I’m Finny4606 and I was diagnosed with CRPS by my pain management dr about 2-1/2..." + (show)
@finny4606

Hi, I’m Finny4606 and I was diagnosed with CRPS by my pain management dr about 2-1/2 years ago, only I only have 1 symptom, then my second doctor said I was misdiagnosed. He sent me to a spine specialist who wants operate on my cervical and lumbar spine. I would really like to get a definitive diagnosis. I’m waiting to hear if Mayo will accept me.

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Good luck on being accepted to Mayo #finny4606. I hope you are, and can find clarity on a definitive diagnosis. I know how frustrating and difficult it can be. No one wants spine surgery unless necessary and helpful. The helpful part seems to be a crap shoot in some cases. Sometimes it comes down to chronic pain management and no more medical interventions. I hope you get to the bottom of it.

How did you end up with CRPS - per your first doctor, that is? Did you have a prior surgery that activated it?

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1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Mar 11, 2023
In reply to @juliesmhunt "Hi Rachel thx for your input much appreciated yes I've tried doing some exercises but the..." + (show)
@juliesmhunt

Hi Rachel thx for your input much appreciated yes I've tried doing some exercises but the next day I can't move I suffer longer & harder afterwards actually my spine is what they call a 90yr olds spine I also suffer from palette alta (something like that) some days it takes all I've got to go to the bathroom I truly feel like I'm 40yrs past my real age....sad hurting & depressingly hopeless....

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Julie, don't give up. Small steady changes can be impactful. Have you worked with a physical therapist to set up a graded exposure, moderate exercise routine? How about gentle morning stretches? Perhaps you havent been taught the proper way to treat your body with ease and grace while accomplishing exercise. What has your spine doctor cleared you to do?

If you don't use it you lose it, whether 59 or 90. But you my friend are way to young still and must have more in the tank. Please stay positive because I bet you are so much more than just your spine issues and have more to contribute in this beautiful world. How have you been handling your mindset? Do you speak with a psychologist to work through emotional and behavioral obstacles?

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dabbs | @dabbs | Mar 11, 2023
In reply to @finny4606 "Hi, I’m Finny4606 and I was diagnosed with CRPS by my pain management dr about 2-1/2..." + (show)
@finny4606

Hi, I’m Finny4606 and I was diagnosed with CRPS by my pain management dr about 2-1/2 years ago, only I only have 1 symptom, then my second doctor said I was misdiagnosed. He sent me to a spine specialist who wants operate on my cervical and lumbar spine. I would really like to get a definitive diagnosis. I’m waiting to hear if Mayo will accept me.

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finney, it might just be me but I’d be cautious when a MD wants 2 spinal operations without first finding out the “ root” cause. Please get a 2nd or 3rd opinion before you let them start cutting….David

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1 reply
finny4606 | @finny4606 | Mar 11, 2023
In reply to @rwinney "Good luck on being accepted to Mayo #finny4606. I hope you are, and can find clarity..." + (show)
@rwinney

Good luck on being accepted to Mayo #finny4606. I hope you are, and can find clarity on a definitive diagnosis. I know how frustrating and difficult it can be. No one wants spine surgery unless necessary and helpful. The helpful part seems to be a crap shoot in some cases. Sometimes it comes down to chronic pain management and no more medical interventions. I hope you get to the bottom of it.

How did you end up with CRPS - per your first doctor, that is? Did you have a prior surgery that activated it?

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Three years ago I’ve had a TKR and then a TKR revision 16 months later, and I’ve been having constant horrible pain in my legs ever since. I’d love to find a doctor very knowledgeable about CPRS. The only symptoms I have is pain every waking minute every day.

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finny4606 | @finny4606 | Mar 11, 2023
In reply to @dabbs "finney, it might just be me but I’d be cautious when a MD wants 2 spinal..." + (show)
@dabbs

finney, it might just be me but I’d be cautious when a MD wants 2 spinal operations without first finding out the “ root” cause. Please get a 2nd or 3rd opinion before you let them start cutting….David

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Thanks David, you are certainly right. I hope I can get a definitive diagnosis soon.

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susanhi | @susanhi | Mar 12, 2023
In reply to @susanhi "I am so sorry for everything that you are experiencing and hope you find some ways..." + (show)
@susanhi

I am so sorry for everything that you are experiencing and hope you find some ways to help you. I can relate with living with chronic pain for over a decade. I can also relate to neighbor harassment and being bullied from them. Even my family bullied me. I just don't understand how bullying can be a game to play on people who are disabled and in constant pain. What is so darn funny about making others feel worse. I'm single and don't have any friends. It would be great if we could talk. Thank you for sharing, it helps me to feel less alone.

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Thank you, that means a lot.

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Mentor
Rachel, Volunteer Mentor | @rwinney | Mar 12, 2023
In reply to @jtstark "I wished I could have some type of rehabilitation, I'm sure it make me stronger and..." + (show)
@jtstark

I wished I could have some type of rehabilitation, I'm sure it make me stronger and I also like being pushed. But at the end of the day I just have a pain pump and medication for severe back through pain.

Jump to this post

What type of doctor will you be seeing at your Mayo Clinic appointment?

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