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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)

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@sal99

I was diagnosed with lupus and MGUS after my covid vaccination. No idea if there is a link. I have really bad neuropathy. Does anyone else experience this? After 2 neurologist. 2 rheumatologist with different diagnosis I am going to Mayo on the 21st of this month to the experts. Hopefully I will get a path forward.

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Replies to "I was diagnosed with lupus and MGUS after my covid vaccination. No idea if there is..."

@sal99 There is no known link between lupus and MGUS after vaccinations for COVID, that I have read about. What many people may not understand, is that lupus is an autoimmune condition. When we get a vaccination, our own bodies are triggered to respond to a known condition like COVID, to prevent it. Underlying conditions that may already be at play in our systems might get prompted to also "raise their heads". They were already there, laying dormant in effect. Our body's response to the vaccine might kick another condition into being active.

If you read the link above from Mayo Clinic about MGUS, you will see there is not a definite cause. I am glad you will be going to Mayo Clinic to the experts. Which campus will you be at [Arizona, Florida or Minnesota]? I will be interested to hear what you find out!
Ginger

I had MGUS before Coid was even a "thing." I know many, many others have as well, actually going back to the 1960s when Dr. Robert Kyle at Mayo Clinic coined the term. I have read countless papers on causes and studies and have not seen one say that having Covid or getting a Covid vaccine or booster had anything to do with anyone who was later diagnosed with MGUS.

You are doing the right thing. Best wishes! My daughter started out with high blood pressure, low sodium which lead to a stroke most likely from the covid virus. Dr say! Everything escalated after that. Praying for answers soon.