Metastic prostate Cancer Survivors - longevity and quality of life
I was just diagnosed at the beginning of January and of course the news hit me hard. I have found a lot of hope in the discussions within this group. I am curious to know how long ago people in this group were diagnosed with metastatic prostate cancer and what your quality of life is like. Right now I have no symptoms from the cancer itself other than weight loss (which I am actively monitoring and dealing with via extra eating) and I have no side effects from the medications the doctors are prescribing. I know that I am at the beginning of this journey and I hope that my current status stays the way it is for many years. We all need to have hope, and I am learning a lot about traditional and new Treatment options.
Interested in more discussions like this? Go to the Prostate Cancer Support Group.
;Sorry....typo...PSA timing intervals 'at the time of BCR'. Thank you.
PSA was measured every six months over a ten year span until recurrence was identified.
Since recurrence PSA is taken every month
I was diagnosed with prostate cancer and treated with radiotherapy 7 years ago ,after that my cancer continued and I'm being treated with hormone therapy, so far not a big problem. Now they want to apply chemotherapy , because of metastasis, and I'm trying to be informed before making a decision whether taking the treatment or not...can someone tell about the real side effects of chemotherapy, I understand that I've got to go through 6 rounds with docexatel....
I am going to try to emulate the attitude of Gary in!
Everything I have read states PSMA PET is the gold standard for identifying micro cells with PSA levels 0.3-0.5.. CT Scans are also subject to the quality of the interpretation of human, I was having an CT for an hernia and the qualified personnel actually stated my prostate was of normal size 8 MONTHS post Radical Prostatectomy.
Finished 6th treatment Docetaxel 1 month ago, im 47 newly diagnosed in sept 2022 with bone metastasis, in good physical shape: Docetaxel was very tolerable on my case, just need to be careful with yourself with meals, REST after each treatment, and DIRNK lots of water during treatment (+/- 1 glass of water per hour!, add day long)
My most notorious side effect: fatigue, contrary to resting, what you need to do is WALK
best
agustin
I had 3 PSMA PET scans and Urologist said there it is metastasized on ribs 7 and 9. Not sure we'll do it again. Ya looks like it metastasized, bit you have had broken ribs and there is scar tissue. Let's do it again oh, it appears to be compatible with metastasized cancer. Oncologist said really can't see much need to do 2 CTs, hest and abdomen. Ya, looks like it is compatible. Nothing shown in the abdomen CT. Had radiation and Bracytherapy 12 years ago. No signs of recurred cancer. Now on Xtandi and Eligard injections. Feel like hell. Before Christma on Casodex and psa wrnt down from 20.8 to 2.7 and felt great. Next psa end of the month interesting to see what is happening
Ask about xovigo I’m on it now it’s a piece of cake ,I’ve had radiation, 5 chemo treatments , they put me on chemo because they found a new spot that was aggressive prostate cancer I have prostate cancer in both my ribs my sternum and my scapula then this new one popped up that’s when they said they had to put me on radiation and then came to Florida went to Moffitt Cancer Center they took me off the chemo and put me on Xovigo I get six treatments once a month it’s a radiation injection into your bloodstream that goes into the bones and gets absorb blood calcium but if your metastasis is bad they will probably wanna put you on chemo first to knock it down the only reason I went on chemo because of the aggressive cancer otherwise my hormonal therapy was working great good luck DAVE
My husband is 61, had prostate removed summer 2020. Now he has been told he has stage 4, because it is in a couple lymph nodes, and the bladder. Taking hormone shots. Then going for a blood work, to see if stopping cells growth and then will do some radiation in summer.
I am curious as to your age, and how this has progressed. I hope we still have many quality years together.